Ethical and Civil Liberties Risks in RFK Jr.’s Autism Registry Initiative

This unprecedented collection of data on individuals without their consent undermines core principles of medical ethics and data governance.

The announcement that Robert F. Kennedy Jr. is overseeing the development of a federal registry of individuals with autism, using private medical records from government and commercial sources, raises serious ethical, legal, and scientific concerns. The breadth of data collection—encompassing pharmacy records, lab results, genomic data, insurance claims…